Hope harper - i know that girl

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When does your absolute terror as a parent turn into an inspiring story for people around the world? While you're living it, it's impossible to tell At 19 months old, Harper had a huge surge of seizures that seemed to just steal everything from her, and that's when she became almost like a vegetable.

At worst she was having plus seizures a day. As hard as it is to say, I used to lay in bed with her every night and cry and every morning in the shower pray that if God didn't heal Harper he'd just show her mercy and take her home to be at peace.

Looking back, I should have known then that Harper's life had some kind of greater purpose In , after watching Dr. I'll never forget giving the CBD oil to Harper and seeing the immediate impact it had on her quality of life.

Within the first three days we had eye contact and verbalization sounds from her, an attempt to interact with us physically and she was now able to show us that she was with us mentally.

It wasn't long before she went a day without a seizure! And then another day without a seizure! In this April 29, file photo, an oral administration syringe loaded with high CBD hemp oil for treating a severely-ill child is shown at a private home in Colorado Springs, Colo.

Before we knew it she was at 45, 50 then 60 days without a seizure. Harper even came out of her stupor, her shell, and interacted with the family, we got her little personality back.

She got to meet her baby brother Seth after he was born late in How was this even possible? After three years of living in hell there was finally light!

Harper does not simply exist here on Earth but rather she lives! How could I ever know that Katiele Fischer , a mother of another CDKL5 daughter Anny Fischer in Brazil, would find Harper's blog from thousands of miles away as she desperately searched for her own answers?

She documented everything with a doctor and lawyer. Just like Harper's, Anny's seizures started to disappear. When the worst happened and Katiele was caught importing the CBD oil illegally, Katiele did something that inspired even our family.

A screenshot from the documentary " Illegal ," which depicts the Fischer family's struggle to secure CBD oil treatment for their daughter.

Dozens of families across Brazil sued the government after Katiele's ruling, revolutionizing cannabis laws in the ninth-largest economy in the world forever.

As things stand today, Brazil is not only allowing CBD hemp oil to be imported into Brazil as a medication with a doctor's prescription, the Brazilian government is subsidizing the payments under their healthcare system.

And now, Brazil is allowing CBD from hemp to be imported for more than epilepsy, but also for several other medical indications, including Parkinson's disease and chronic pain.

What makes me angry that the FDA our US government has hesitated to act as quickly for the health interests of our people, freeing them from pain and suffering, in a country known for supposed freedom!

My heart is full! My Harper, unknowingly to us, helped change the world. Despite all of her struggles and all of her suffering, I like to think that Harper was an angel, and that helping save all of these poor suffering people in Central and South America will be a part of her legacy forever.

On Friday, January 8, , our family tragically lost our little angel Harper. As a mom, I really can't write into words what it's like to lose your daughter, it's a hole inside of you, and really nothing ever fills that, nothing will ever make that better - or make it go away.

For five short years that felt forever long we walked this fine line of hope and hopelessness while Harper fought each day simply to survive so she could do her job here on Earth and change the world.

However, on behalf of the Fischers' bravery, and for suffering families in Brazil, and all of the thousands of Anny Fischers out there around the world, I want the world to know about Harper's story.

I quickly look away, feeling that blush get even brighter. Picking up my wine glass, I take another healthy swallow as I do a quick scan, taking in all that is the Reid Family property.

And I know Owen loves having her around. I jump up from my chair with a little more power than I mean and quickly stumble when the narrow heel of my five-inch shoes sinks into the soft grass beneath me.

I feel it, those words, every single syllable deep down in my gut. Each rumbled word vibrating through my body creating a slow burn until they end with a sharp pulse between my legs.

His arms locked at my elbows and my back solidly against his front—where my graceless stumble caused me to end up. I jerk my body tight and feel his laughter reverberate through my body once again.

His smile turns knowing and his eyes darken before dropping to my lips. But, I most definitely am not drunk. I think I would know if I was drunk.

I might not be drunk, but I am definitely slightly past tipsy. He wants me. I shiver, his words hitting me close to home, but the tone causing me to forget I should be pushing him away.

His eyes keep their hypnotizing hold on my own. I hear Dani excuse herself. The music is still floating in the air around us. The cloak of depression that normally lingers loosely around my shoulders, dropping to my feet with the feel of Liam pressed tight.

I reach out and curl my fingers around his forearms. My eyes growing wide when his brow lifts. With a quick push I rock up and close the distance that is left between our mouths.

My hairs stand on end, my skin pebbles—going cold before rushing heat fills my veins, and the very ttowardhump of my heart seems to skip a beat the second our lips touch.

One thing I know for sure. I want this. His groan vibrating against my chest only lights the feeling that is firing through my skin.

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It wasn't long before she went a day without a seizure! And then another day without a seizure! In this April 29, file photo, an oral administration syringe loaded with high CBD hemp oil for treating a severely-ill child is shown at a private home in Colorado Springs, Colo.

Before we knew it she was at 45, 50 then 60 days without a seizure. Harper even came out of her stupor, her shell, and interacted with the family, we got her little personality back.

She got to meet her baby brother Seth after he was born late in How was this even possible? After three years of living in hell there was finally light!

Harper does not simply exist here on Earth but rather she lives! How could I ever know that Katiele Fischer , a mother of another CDKL5 daughter Anny Fischer in Brazil, would find Harper's blog from thousands of miles away as she desperately searched for her own answers?

She documented everything with a doctor and lawyer. Just like Harper's, Anny's seizures started to disappear.

When the worst happened and Katiele was caught importing the CBD oil illegally, Katiele did something that inspired even our family. A screenshot from the documentary " Illegal ," which depicts the Fischer family's struggle to secure CBD oil treatment for their daughter.

Dozens of families across Brazil sued the government after Katiele's ruling, revolutionizing cannabis laws in the ninth-largest economy in the world forever.

As things stand today, Brazil is not only allowing CBD hemp oil to be imported into Brazil as a medication with a doctor's prescription, the Brazilian government is subsidizing the payments under their healthcare system.

And now, Brazil is allowing CBD from hemp to be imported for more than epilepsy, but also for several other medical indications, including Parkinson's disease and chronic pain.

What makes me angry that the FDA our US government has hesitated to act as quickly for the health interests of our people, freeing them from pain and suffering, in a country known for supposed freedom!

My heart is full! My Harper, unknowingly to us, helped change the world. Despite all of her struggles and all of her suffering, I like to think that Harper was an angel, and that helping save all of these poor suffering people in Central and South America will be a part of her legacy forever.

On Friday, January 8, , our family tragically lost our little angel Harper. As a mom, I really can't write into words what it's like to lose your daughter, it's a hole inside of you, and really nothing ever fills that, nothing will ever make that better - or make it go away.

For five short years that felt forever long we walked this fine line of hope and hopelessness while Harper fought each day simply to survive so she could do her job here on Earth and change the world.

However, on behalf of the Fischers' bravery, and for suffering families in Brazil, and all of the thousands of Anny Fischers out there around the world, I want the world to know about Harper's story.

Our family also decided to donate Harper's body to science to help find a cure for CDKL5 epilepsy, and reach out to seek funding for research.

Harper is actually the first-ever brain "banked" to find a cure, making her another first. In the end, I am honored that she chose me to be her partner in helping her accomplish more in five years than most people do in a lifetime without ever having to utter a single word herself.

Please help me urge our U. Write your senator or congressman a letter, and urge them to support ending the schedule-1 for THC and to support new research!

Or, if you're not a writer, please donate to help CDKL5 research. Harper is watching all of us, and she would want the world to know.

Penny Howard is a resident of Dallas, TX, proud wife and mother to three beautiful children: Lilly, 8, Harper, 5, who just left us , and Seth, who is 1.

Penny homeschools her children and is a passionate, lifelong advocate for the power of CBD from hemp, after seeing firsthand CBD oil stopping her daughter's seizures and giving her life.

The Grade 7 students took it on as part of their service project and started brainstorming ways they could help Harper.

To start, about letters were written. Some were sent to Harper as letters of encouragement. The others were sent to other schools around the province asking them to do the same.

Amanda said when she opened one, confetti came flying out. The Hankis estimate about 15 to 20 fundraisers are going on right now in support of Harper.

Her supporters come from British Columbia, Edmonton and Toronto. It was recently submitted for approval for use in Canada.

The Hankis hope that will be done by the end of the year. But the process of negotiating a price could take up to two years — time Harper might not have.

In the meantime, the Hankis have a Special Access Program. They fought for the application to pay to bring Zolgensma into Canada and have a physician administer it at a hospital.

The funds raised will go towards paying the hefty price tag to do this. Tardif-Blakley and her Grade 7 students plan to help in any way they can.

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